At the age of 5, she is full of childlike innocence and knows the world. For the little girl Jingxi, it is like a nightmare. Mucopolysaccharide storage disease has taken away her angel face, and her mother doesn't even dare to look at xiaojingxi's face. There are only two ways to treat this disease. The first is the high cost of lifelong medication, and the second is stem cell transplantation, but only about one third of patients can find a match, and the operation risk is very high. Fortunately, Jingxi waited until she met the minimum standard of transplantation. I hope her operation will be successful, and I hope more people will pay attention to rare diseases and sticky baby!
A 5-year-old girl suffering from rare diseases faces huge treatment fees at the age of 50
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