Sihaiwang: a five-year-old should be innocent and enjoy a carefree childhood. However, Tian Jiaxin, a five-year-old, is different from other children. He has been suffering from strange diseases since childhood, which makes his face swollen like a hippo. Let's see what's going on!
Tian Jiaxin, 5, picked up a watermelon and put it down. His face is swollen like a hippo. Fate played a cruel joke on the little boy. After suffering from the rare megagnathiasis, xiaojiaxin's face swelled up day by day until she squeezed her mouth, nose and esophagus. Unable to breathe or eat with his mouth, a catheter became his lifeline.
At the beginning of this month, his condition worsened. He went to Shanghai for surgery from his hometown Badong tea shop, but his family couldn't afford the high cost of later treatment. A few days later, his mother had to bring him back.
Jiaxin, who likes to write and draw, now practices her name on the small blackboard every day. When she has time, she can use the software to make herself beautiful. "I want to take a big breath of fresh air," he said to the reporter, laughing at his indistinct words.
Sister and brother love
Happy childhood on the blackboard
5-year-old Jiaxin ran barefoot in a dimly lit simple rental house in Huangtupo community, Badong County, Monday, while 12-year-old sister Tianna kept shouting: 'slow down, fall down carefully. '
A thin pipe from xiaojiaxin's left face to his mouth. The whole face is bigger than his head, which is in sharp contrast to his thin body. 'wheezing & hellip; & hellip;' when he was sweating hard, the air flow from the catheter on xiaojiaxin's throat made a harsh sound, but this did not hide his naughty and lively nature. In the kitchen, he picked up a cut watermelon, put it on his mouth, smelled it, couldn't eat it with his mouth, and put it back.
Mom and dad all went out to work. There were only two brothers and sisters at home. Tianna was going to study in junior high school. She had to take advantage of the summer vacation to study hard. After turning over a few pages of the book, she still felt uneasy about her brother. She went to pick up Jiaxin and put her on her leg to talk with him. 'how about writing? Today you will practice Tian Zi and learn to write good characters. "Xiaojiaxin happily points to a small blackboard hanging on the wall.
Take a chair, Tianna put xiaojiaxin on it, stroke by stroke, and he wrote carefully with chalk. Sometimes it's hard to breathe, so I put down my hand and look back at my sister. I'll take a rest and write again.
Tianzi is finished. Jiaxin is mischievous. She picks up her sister's mobile phone and jumps on the sofa. Then she runs into the inner room again. Looking at the photos in the mobile phone, Jiaxin skillfully swivels the screen to find out herself and clicks on a software to start 'repairing the pictures'. Under the guidance of his sister, he cut, sharpened, colored and switched scenes. Soon, he realized "beauty" for himself, shaking his cell phone and laughing.
Liquid diet
Ill fated and tortured
At noon, my mother Tian Shusheng came back from work. Working in a kitchen in the county, she gets home on time every day. Jiaxin's meal is a bit complicated. She has to do it herself, or she won't rest assured.
After washing the milk, Tian Shusheng takes off a small sleeve on Jiaxin's neck and puts it in a bowl to wash it with hot water. 'this one needs to be taken down every day for disinfection and cleaning, or it will be blocked by phlegm. 'use the syringe to suck out the milk, Tian Shusheng carefully injects it into Jiaxin's mouth,' the child can't eat, so he can only inject liquid food like this. 'daily life can only be maintained by injection of liquid food, and other nutrients can hardly keep up with it. After a month, Tian Jiaxin, who has always been chubby, has become as thin as firewood.
Looking up at xiaojiaxin, who was swallowing milk, Tian Shusheng's tears were turning. 'this child's life is really bitter. "From birth, colic, intestinal distort to megagnathiasis, xiaojiaxin has been suffering from disease, and the battle between life and death has never subsided. In November 2016, with the help of the society, xiaojiaxin successfully completed the first jaw resection.
At that time, xiaojiaxin found the taste of childhood in an instant. She followed her grandmother Zou Hong back to Yanziling village, a teahouse in her hometown. The unrestrained rural life made him relaxed and comfortable. But the happy time is fleeting, the bad luck comes again. In April of this year, the symptoms of "swollen face" and "dyspnea" recurred and became more serious. Soon, xiaojiaxin's swollen face squeezed her nostril into two small holes. Every breath was like snoring, which could cause suffocation at any time.
Optimistic and strong
I want to breathe fresh air
Time is life. On July 23, Tian Shusheng took the borrowed 5000 yuan and Tian Jiaxin alone to Shanghai for medical treatment.
One day of turbulence, arrived at the hospital is 11:00 at night, looking for a hotel to run a big circle, Tian Shusheng are passive about three or four hundred high price scared back. 'three or four hundred yuan is my son's life-saving money. Even if I live on the street, I have to save it. 'she took her son and sat in the hospital hall all night. That night, she didn't close her eyes all night. She woke up her son from time to time to prevent his nasal muscles from relaxing and blocking the respiratory tract when he was asleep.
On the morning of August 3, xiaojiaxin was lying on the operating table of the Ninth People's Hospital Affiliated to Shanghai Jiaotong University. It was the second time that he was only 5 years old to receive treatment and operation for megagnathiasis. Waiting for him would be a new life redemption.
"Does it hurt?" no! I'm used to it. '
'I'll cut it off and you'll be able to breathe, OK?' 'OK! Thank you, doctor. Hu Yongjie, the attending doctor, still remembers the strong boy from Hubei Province. He said that xiaojiaxin's condition is very serious, but the child's optimistic and positive attitude is moving.
According to the complicated situation of Tian Jiaxin's condition, experts consulted several times and the operation plan was discussed collectively. Finally, a expedient strategy was worked out: to use gas cutting operation and insert gas cutting casing to assist breathing. Five hours of long surgery, for Tian Shusheng, as if waiting for a few years, fortunately, the operation is also very successful.
'Mom, am I cured now? I can carry my schoolbag to school. 'on the bed, xiaojiaxin endured the pain of waking up from the anesthetic and vaguely looked forward to the future. Tian Shusheng nodded to her son with tears. 'well, I can breathe a lot of fresh air in the future. '
Hard life
Husband and wife save money to raise money for treatment
However, the God of fate did not care for this miserable child. "This operation only alleviated the child's dyspnea. In order to completely cure it, the jaw should be removed and reconstructed in stages. 'after these difficult operations, the medical expenses alone will be 700000 yuan. The discharge summary issued by the doctor almost despaired Tian Shusheng.
Tian Shusheng and her husband are both from the countryside. The husband from Sichuan also has physical disability. One of them works in the kitchen and runs business, the other is looking for a part-time worker to help others with installation. The total monthly working income is more than 3000 yuan. They can only find the cheapest house to rent in the county, and the monthly rent is less than 200 yuan.
At present, their salaries are barely enough to sustain themselves and subsidize the cost of general medicine, and their daughter will spend more after junior high school, so they can't afford the high cost of xiaojiaxin's treatment. 'if we are destined to be Jiaxin's parents, we should protect him well. No matter how hard we are, we should also cure him. "Tian Shusheng said that she came back with Jiaxin after the operation in Shanghai. She can't afford the high cost of hospitalization. Now she has to work harder to earn money and raise treatment fees for her children. No matter how difficult it is, she and her husband will never give up the hope of curing xiaojiaxin.
Xiaojiaxin's illness and sufferings have also attracted the attention of some local caring people in Badong. Over the past few days, some social media have appealed to the society on the Internet to help the suffering child.