Original title: Women Write 585 words thank you letter with their eyes, hoping more people will pay attention to the frozen people
Thank you for your hard work. Recently, doctors in Xi'an traditional Chinese medicine encephalopathy hospital received a special thank-you letter. Although it was only 585 words, it was knocked out by the patient's eyes. The reporter learned from the hospital on the 24th that Shen Li, the patient who wrote the letter, was a "gradually frozen person". This short letter was completed after several hours by means of auxiliary equipment and eye movement.
Around 2014, Shen Li was diagnosed with amyotrophic lateral sclerosis. After that, Shen Li gradually became unable to take care of herself and had difficulty eating. In September 2019, Shen Li came to Xi'an traditional Chinese medicine encephalopathy hospital for minimally invasive gastrostomy. In order to express her gratitude to the medical staff and encourage more "freezing people" like her, she thought of writing letters with her eyeballs.
Shen Li's husband Wang Jiaoke told reporters that Shen Li typed through a computer instrument, which allows users to select text on the screen by turning their eyes. Although typing is slow and hard, it's the best way for Shen Li to communicate with the outside world.
It takes a lot of money and energy to take care of the "freezing people.". Over the years, Shen Li's husband Wang Jiaoke not only takes care of her daily life, but also massages her every day to slow down her muscle atrophy. When Shen Li has negative emotions, her husband will also give her psychological counseling.
'before, I had the courage to take care of her. Now I know that the more the disease develops, the worse it is. It is unlikely to be optimistic. Wang Jiaoke said that sometimes he thought about giving up treatment, but seeing that his wife was trying to live every day, he decided to accompany her to the end.
Although she is' confined 'in a wheelchair, Shen Li is very cheerful. The reporter learned that Shen Li is also the wechat group administrator of the "gradually frozen people" care Mutual Aid Association. In order to manage the wechat group, she learned to surf the Internet through eye tracker and other auxiliary devices, often shared the family nursing knowledge of "gradually frozen people" in the group, and communicated with some patients.
On the one hand, treatment is more important than nursing, and psychological counseling is also very important. Bai Haisheng, director of the ward of gradually frozen people in Xi'an traditional Chinese medicine encephalopathy hospital, said that the awareness of gradually frozen people is not high in the society at present. He hoped that more caring people would pay attention to this group and patients, so that patients could 'thaw' as soon as possible in love.
At the end of the interview, Shen Li blinked and knocked on the screen: "I want to live. '